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Through a deliberative process over hours of facilitated discussion and weeks of reflection, all 20 participants agreed that it was within social licence for health data to be used:

  • by healthcare practitioners — to directly improve the healthcare ​decisions and services provided to a patient
  • by governments, healthcare facilities, and health system ​administrators — to understand and improve health care and the healthcare system
  • by university-based researchers — to understand the drivers ​of disease and wellbeing

There was further consensus that it is NOT within social licence:

  • for an individual or organization to sell (or re-sell) someone else’s identified health data
  • for health data to be used for a purpose that has no patient, public, or societal benefit​

There were many different views about essential requirements for a use or user of health data to be within social licence and dialogue did not lead to consensus. By the end of the process, participants had generated a list of 85 essential requirements, with some participants actively opposed to requirements that others thought were essential (see Appendix C Table). ​Some requirements were supported by many people (see Figure 1, Appendix E), while others were seen as essential by just one or two participants (see Figure 2, Appendix E).