Inclusion, Diversity, Equity & Accessibility
Inclusion, Diversity, Equity and Accessibility (IDEA) comprise a set of complementary concepts that help guide purposeful action toward addressing systemic, historic and contemporary oppression and inequities across different populations. IDEA is one mechanism that helps to acknowledge and act on the fact that socially marginalizing systems, such as racism, sexism, transphobia and ableism create barriers in society, in workplaces, and within the data systems and research structures that make up HDRN Canada.
IDEA @ HDRN Canada
The IDEA Team strives to benefit people who have been and continue to be systematically excluded from data research and further marginalized by the findings of data outputs. Work is now underway to establish an IDEA strategy for HDRN Canada to deliver education and training to build organizational capacity as well as identify priorities, barriers, challenges and opportunities for IDEA across the network. See the IDEA Team Terms of Reference.
HDRN Canada’s IDEA Team is composed of 30 people from each HDRN Canada Member Organization, all HDRN Canada Working Groups and Teams and SPOR SUPPORT Units from across the country. The IDEA Team is actively committed to IDEA-informed change, focusing on a range of issues, from the collection, access, use and dissemination of administrative or routinely collected data in research and across the data lifespan, to issues pertinent to the operation and co-creation of HDRN Canada as a distributed network. The IDEA Team has three goals:
Learn
Learn about and share information to embed IDEA into every Working Group, Team or operational process central to HDRN Canada and within HDRN Canada’s Member Organizations.
Challenge
Challenge the status quo, bringing together knowledge and experience from across the country to recognize and dismantle potentially damaging norms that have and continue to exist in our collective work and research environments.
Support
Support the identification, development and implementation of IDEA strategies with consideration of the diverse needs for IDEA-informed data research in Canada.
IDEA Definitions & Principles for Working Together
This living document helps create a shared understanding of Inclusion, Diversity, Equity and Accessibility at HDRN Canada, offering a baseline for enacting these concepts and principles in our collective work.
Big IDEAs About Health Data
HDRN Canada’s Big IDEAs about Health Data Speaker Series features a variety of experts discussing how data can be used to advance health equity in Canada.
Access Living
Ableism 101Alberta Civil Liberties Research Centre
Calgary Anti-Racism Education (CARED)amélie lamont
The Guide to AllyshipCanadian Centre for Diversity and Inclusion
Glossary of TermsHuman Rights Channel
SexismNational Collaborating Centre for Determinants of Health
Gender Identity, Sexual Diversity, and Health Equity: A Curated ListNational Equity Project
Lens of Systemic OppressionUniversity of British Columbia
Glossary of TermsKimberlée Crenshaw
On intersectionality, Demarginalizing the intersection of race & The urgency of intersectionalityIbram X Kendi
How to be an anti-racistEmily Ladau
Demystifying disabilityRandall Pinkett
Data driven DEILayla Saad & Robin DiAngelo
Me and white supremacyAlice Wong
Disability visibilityLily Zheng
DEI deconstructedActionable Intelligence for Social Policy
Toolkit for centering racial equity in data integrationBlack Health Equity Working Group
Engagement, governance, access and protection (EGAP) frameworkBC’s Office of the Human Rights Commissioner
Disaggregated demographic data collection in BC: The Grandmother PerspectiveBrock University
IDEA toolkitGovernment of Canada
How to integrate intersectionality theory in quantitative health equity analysis? A rapid review and checklist of promising practicesOntario SPOR SUPPORT Unit
Fairness is excellence frameworkWe all Count
Data equity frameworkGreta Bauer & Ayden Scheim
Methods for analytic intercategorical intersectionality in quantitative research: Discrimination as a mediator of health inequalities.Caroline Criado Perez
Invisible women: Data bias in a world designed for menCatherine D’Ignazio & Laura F. Klein
Data feminismLena Dencik et al.
Exploring data justice: Conceptions, applications and directions.Virginia Eubanks
Automating inequalityLisa Gitelman
Raw data is an oxymoronRachel R. Hardeman & J’Mag Karbeah
Examining racism in health services researchMonica McLemore
Reimagining methodological considerations for research studies using “big” administrative data setsCathy O’Neil
Weapons of math destructionBritish Columbia
Anti-Racism Data ActCanadian Institute for Health Information
Guidance on the use of standards for race-based and Indigenous identity data collection and health reporting in CanadaCanadian Institute for Health Information
Equity stratifiersStatistics Canada
Gender, Diversity and Inclusion HubUnité de Soutien SSA Québec
Inclusive Practices in Participatory or Partner-Based Research with Socially Excluded Persons